Cystic fibrosis is a lifelong, genetic disease that affects multiple systems throughout the body, including the lungs. There has been tremendous progress in the treatment landscape pertaining to cystic fibrosis, which has led to significant strides in many areas of the disease such as a longer lifespan. Our cystic fibrosis program is an accredited affiliate center associated with Seattle Children’s Hospital and the University of Washington in Seattle. Our team is comprised of many experienced and dedicated providers that will provide optimal care to you to promote normal development and growth and reduce symptoms.

Services we provide include:

• Medical treatments
• Nutrition
• Respiratory therapists
• Referrals to other specialists, including endocrinology, gastroenterology, otolaryngologists, and psychiatry/psychology
• Support services

Specialists who may be involved in your care include:

• Dietitians
• Nurses
• Pharmacists
• Pulmonologists
• Respiratory therapists
• Social workers

Please visit the Cystic Fibrosis Foundation website at www.cff.org.

Our pediatric endocrinology caregivers provide comprehensive patient-centered care to diagnose and manage endocrine conditions in infants, children and adolescents. Our multidisciplinary team approach includes doctors, nurses, medical assistants, diabetes educators, dietitians, social workers and behavioral health providers. We partner with other specialty clinics, primary care physicians, patients and their families to develop a personalized care plan to meet the needs of our patients.

Providence Pediatric Endocrinology provides a variety of pediatric services for children. Our pediatric caregivers are experienced in caring for growing children. We partner with each family and their child's primary care provider to help them thrive.

• Type 1 diabetes
• Type 2 diabetes
• Prediabetes
• Early or delayed puberty
• Thyroid conditions
• Irregular periods/amenorrhea
• Growth hormone deficiency and growth concerns
• Gender dysphoria
• Adrenal disorders
• Turner syndrome
• Klinefelter syndrome
• Prader Willi syndrome
• Polycystic ovarian syndrome
• Gynecomastia (enlargement of breast tissue in males)
• Pituitary conditions
• Mineral metabolism disorders

• Stimulation testing
• Diabetes education
• Continuous glucose monitoring starts
• Insulin pump starts
• Injection training

Please fill out the following forms to get started with or return to your child’s care with us:

• Endocrine and Diabetes New Patient Paperwork
• Endocrine and Diabetes Return Patient Paperwork

• Glooko Diabetes Management App
  Glooko allows you to download your diabetes device data to your iOS or Android device, integrate food and lifestyle data and share reports with your care team.
• American Diabetes Association 504
• Back to School Checklist for Type 1 Diabetes 
• Joslin Diabetes Center
• Bright Spots & Landmines Diabetes Guide
• Taking Control of Your Diabetes Video Vault 
• MyT1DTeam
• Understanding Carbs and Their Effect on Blood Sugar 

• Blood sugar meter
• Blood sugar test strips
• Insulin pens (both short and long acting)
• Glucagon
• Simple carb source for treatment of low blood sugars
• Ketone Test strips
• Alcohol pads
• Phone numbers of emergency contacts

• Extra pump supplies
• Vial of rapid acting insulin
• Extra batteries/charger for your device

For children with obesity, losing weight and eating healthy foods can be difficult. Our dietician experts in pediatric medicine can help to give your child the best chance for reaching a healthy weight.

While obesity can lead to type-2 diabetes, type-1 diabetes happens when the pancreas stops making insulin. Both types require a healthy diet, and our registered dieticians along with our certified diabetes educators (CDE) provide education and coaching for your child and their family.

Our team understands the impact diet can have on diabetes management. They will help you develop a plan for what, when and how much your child eats that will help keep them create healthy habits. Our nutritional services include help with:

• Infant nutrition
• Childhood diabetes management
• Food allergies and intolerances
• Gastrointestinal problems
• Weight gain or loss
• Failure to thrive

Children with type-1 diabetes, along with some children with type-2 diabetes, need to use insulin. Our CDEs will help you learn how to monitor their blood sugar, along with the best way to inject insulin. If your child is 13 or older, we will teach them these skills too.

Good nutrition helps keep growing children on the right track – especially when they’re facing illness, injury or other health challenges. The nutritional support team provides complete individualized guidance focused on the unique needs of infants, children and adolescents.

We offer family-focused care in a family-friendly environment. We’ll assess your child’s health, diet and nutritional needs and talk about a customized care plan. If your child has related conditions, ranging from developmental disorders to diseases such as diabetes, gastrointestinal problems, or kidney failure, we’ll work across specialties to develop responsive and personalized therapies.

We work together to help your child feel better, get well and get back to a happy and healthy life.

Pulmonary medicine involves the evaluation, diagnosis, and treatment of lung diseases and the respiratory system. Our pediatric pulmonologists care for infants, children, teenagers, and young adults with respiratory and sleep conditions. Our team evaluates symptoms including cough, wheeze, shortness of breath with/without activity, chest pain, and recurrent pneumonia. We also offer a cystic fibrosis specialty clinic that includes a multi-disciplinary team of providers like respiratory therapists, social workers, and nutritionists. Our primary goal is to educate you and your child regarding any underlying breathing concern so that the condition is managed as best as possible moving forward.

• Asthma
• Bronchiectasis
• Chronic lung disease due to prematurity
• Chronic and recurrent respiratory infections
• Cystic fibrosis
• Pulmonary hypertension
• Aspiration
• Neuromuscular disorders
• Primary ciliary dyskinesia (PCD)
• Sleep disorders
• Swallowing disorders
• Ventilators/tracheostomies

• Cystic Fibrosis Program
• Flexible bronchoscopy
• Pulmonary function tests (PFTs)
• Ventilation/tracheostomy program

• PHA Pediatrics - Pulmonary Hypertension Association
• Primary Ciliary Dyskinesia Foundation - National Organization for Rare Disorders
• Big Picture Perspective | Muscular Dystrophy Association 
• Sleep Health Topics - National Sleep Foundation

Nephrology is a specialty that treats conditions and diseases of the kidney. Kidney diseases cause problems with how the kidneys filter waste and toxins out of the body.

Our Pediatric nephrologists diagnose, treat, and manage many disorders affecting the kidney and urinary tract. They also know how to evaluate and treat problems with growth and development that are specifically related to chronic kidney disease.

Pediatric nephrologists are the coordinators of a team that includes specialized nurses, dieticians, and social workers, all dedicated to the care of children with kidney diseases. They work closely with other physicians such as pediatric urologists, pediatric surgeons, and pediatric radiologists.

The staff at Providence Pediatric Subspecialty Clinic collaborates with the child, the parents and the child’s primary care physician to develop and coordinate individualized treatment plans for a variety of kidney-related conditions, including:

• Acute kidney injury
• Congenital anomalies of the kidneys and urinary tract
• Chronic kidney disease
• Cystic kidney disease
• Dialysis
• Glomerulonephritis
• Hematuria (blood in the urine)
• Hemolytic uremic syndrome (HUS)
• Hypertension, including Renovascular Hypertension (high blood pressure)
• IgA Nephropathy
• Inherited kidney diseases
• Kidney failure
• Kidney stones
• Kidney transplantation
• Nephrotic syndrome
• Proteinuria (protein in the urine)
• Renal transplantation
• Systemic inflammatory diseases, including systemic lupus erythematosus and ANCA Vasculitis
• Urinary tract infections
• The interpretation of laboratory studies related to kidney disease

To evaluate and treat kidney issues, we offer many services tailored to your child’s specific condition. These include:

• Ambulatory blood pressure monitoring
• Dialysis
• Continuous renal replacement therapy
• Hemodialysis
• Kidney biopsy
• Lab study interpretation of kidney disease
• Medication therapy
• X-ray study interpretation of the kidneys

Our specialists are experts in these pediatrics conditions, and we strive to support your family as you navigate your child’s illness.

Nephrology providers care for pediatric patients at the Pediatric Subspecialty Clinic one week per month.

• If your child hasn’t been seen in the Pediatric Subspecialties Nephrology Clinic, please fill out the Nephrology New Patient Paperwork.
• Ambulatory Blood Pressure Management Patient Instructions and Diary.
• Blood Pressure Log

Rheumatologists diagnose and treat inflammatory diseases that affect muscles, joints and connective tissues. These complex conditions, which include juvenile rheumatoid arthritis and lupus, are called rheumatic diseases. Many other conditions may begin with bone and joint pain, and rheumatologists can help diagnose these and make sure your child gets the right care.

Rheumatology conditions treated by our providers include but are not limited to:

• Juvenile idiopathic arthritis (JIA)
• Systemic Lupus Erythematosus (SLE/Lupus)
• Chronic nonbacterial osteomyelitis (CNO) / Chronic Recurrent Multifocal Osteomyelitis (CRMO)
• Recurrent fever syndrome (formerly known as periodic fever syndrome)
• Juvenile Dermatomyositis (JDMS)
• Vasculitis
• Uveitis
• Inflammatory Brain Disorders
• Scleroderma
• Spondyloarthropathies
• Behcet’s disease

Our specialists are experts in these pediatrics conditions, and we strive to support your family as you navigate your child’s illness.

Rheumatology providers care for pediatric patients at the Pediatric Subspecialty Clinic one week per month either in person or virtually. You may be offered a telehealth (virtual) appointment.

If you have a child with a gastrointestinal illness, you know how it can interfere with their lives. They may avoid school activities and choose to stay home rather than getting together with friends. Here at Providence Pediatric Gastroenterology in Anchorage, we’re dedicated to helping these kids, as well as those with liver conditions, get back to enjoying their lives.

Our pediatric gastroenterology caregivers provide comprehensive patient-centered care to diagnose and manage gastrointestinal conditions in infants, children and adolescents. Our multidisciplinary team approach includes doctors, dietitians, pharmacists, social workers, behavioral health providers, nurses, and medical assistants. We partner with other specialty clinics, primary care physicians, patients and their families to develop a personalized care plan to meet the needs of our patients.

Many gastrointestinal (GI) conditions in children can be treated by their primary care physician. However, complicated GI problems should be treated by experts along with their primary care providers. We treat children from birth through 21 years of age who have the following conditions:

• Feeding and swallowing disorders
• Failure to thrive and malnutrition
• Chronic abdominal pain
• Gastroesophageal reflux disease
• Vomiting
• Constipation and encopresis
• Diarrhea
• Irritable bowel syndrome (IBS)
• Food intolerances (lactose intolerance, congenital sucrase iso-maltase deficiency (CSID).)
• Disorders of gut and brain interaction (DGBI, previously known as "functional gastrointestinal disorders")
• Gastrointestinal infections (Helicobacter pylori, Clostridium difficile.)
• Celiac disease
• Pancreatitis
• Inflammatory bowel disease (IBD; Crohn's Disease, Ulcerative Colitis)
• Eosinophilic gastrointestinal disorders (EGID)
• Small intestinal bacterial overgrowth (SIBO)
• Short gut syndrome
• Liver diseases (Non-alcoholic fatty liver disease (NAFLD), autoimmune liver diseases, Hepatitis C infection.)
• Polyposis syndromes

We provide a range of diagnostic tests and treatments, including:

• Endoscopy services including upper endoscopy (EGD), colonoscopy and flexible sigmoidoscopy (diagnostic, with biopsies, foreign body removal, polypectomy, balloon dilations of strictures, Botox injections, gastrointestinal bleeding control, gastrostomy/gastro-jejunostomy tube replacements)
• Video capsule endoscopy
• Specialized testing for gastroesophageal reflux disease using Bravo ph capsule or ph-impedance catheters
• Endoscopic and in-clinic replacement, management and teaching for nasogastric tubes, gastrostomy-tubes and gastro-jejunostomy tubes
• Management of IV nutrition (PN; parenteral nutrition)
• Medication injection training for specialty medications
• Breath testing for small bowel intestinal overgrowth (SIBO)
• Care coordination with home health companies, SLP/PT/OT therapy services, radiology departments
• Care coordination for intravenous infusions (iron or other medications) with infusion centers
• Coordination with outside facilities for complex GI Conditions, such as genetic and metabolic liver disease, liver transplant and motility disorders
• Dietary management of tube feeds, feeding difficulties, malnutrition, celiac disease, inflammatory bowel disease, food intolerances or allergies, short gut syndrome, fatty liver, pancreatic insufficiency
• In house pharmacist consultation upon request

• Gastroenterology new patient form

The following resources are a great place to start learning more about your child’s condition and be an active participant in treatment. Please note these websites do not constitute medical advice and you should ways check with your medical provider before beginning any treatment.

• About Kids GI 
• GI Kids

• Camp Oasis
• Crohn’s and Colitis Foundation
• Nutrition in Immune Balance

• Low FODMAP Diet
• Low FODMAP Diet Teaching Tool

• Beyond Celiac
• Camp Blue Spruce 
• Gluten Free Diet Teaching Tool
• Gluten Intolerance Group

• Feeding Matters
• The Oley Foundation 
• Tubie Friends 

• Circle App
• MyPlate 

Our pediatric primary care is specially designed to support children with complex medical and developmental needs. We work closely with families to offer personalized, coordinated care for everyday illness and common conditions.

When your child has complex needs, it’s important to have all their providers in one place. Our clinic is co-located with pediatric specialists in pulmonology, neurology, gastroenterology, endocrinology, nephrology, rheumatology, dieticians and social work. This means you won’t have to travel far for specialized care, and your child can feel safe knowing their regular doctor is still on the team.

We know how important convenient care is for your family. Special services offered at our pediatric primary care clinic include:

• A dedicated triage nurse who can determine what kind of care your child needs and coordinate their care
• Intentional scheduling of well-care appointments with specialty visits
• Longer-than-usual primary care visits
• Preventive screenings and immunizations
• Prompt sick care
• Telemedicine visits when appropriate
• Valet parking

We treat a variety of common conditions, such as ear infections, fevers, rashes, vomiting and the bumps and bruises of childhood. We can also diagnose and treat chronic conditions, including:

• Attention-deficit/hyperactivity disorder (ADHD)
• Asthma
• Behavioral health conditions
• Constipation
• Eczema
• Developmental issues
• Growth concerns

• Well Child Clinic questionnaires by child’s age:
  • Newborn: 0-7 days
  • Newborn: 2 weeks
  • Newborn: 2 weeks 1 month
  • 2 months old
  • 4 months old
  • 6 months old
  • 9 months old
  • 12 months old
  • 18 months old
  • 2 years old
  • 2 ½ years
  • 3 years old
  • 4 years old
  • 5 years old
  • 6 years old
  • 7-8 years old
  • 9-10 years old
  • 11-12 years old
  • Confidential Teen questionnaire (12-18 years old)
  • 13-14 years old
  • 15-17 years old
  • 18-21 years old

• NICHQ Vanderbilt Assessment Scale Parent Informant

• NICHQ Vanderbilt Assessment Scale Teacher Informant

• PHQ-9 Depression Screen

• Healthy Children
• Center for Young Women's Health
• Young Men's Health
• CDC Vaccine Information

• Help Me Grow
• Program for Infants and Children
• Anchorage School District Early Intervention
• Stone Soup Group
• ADHD Educational Rights
• Understood.org
• ADDitude
• Alaska Autism Resource Center

• Thread Alaska 
• Alaska 2-1-1
• Jennifer Aist Lactation Consulting & Education Services

Providence's pediatric neurology program offers inpatient and outpatient consultations and care for childhood neurological conditions.

Our pediatric neurology specialist team expertly diagnose and manage a wide range of acute and chronic conditions that impact your child’s brain, spine, nerves and muscles. They will work to create a treatment plan that meets your child’s unique needs.

Our team understands your concerns and the challenges you and your family experience. We partner with you, your child’s primary care provider and other pediatric specialists to give your child every possible advantage.

Providence Pediatric Neurology specializes in treating children with:

• Brain and spinal cord tumors
• Cerebral palsy and spasticity
• Developmental delays
• Epilepsy and other seizure disorders
• Movement disorders
• Neurogenetic and neurometabolic conditions
• Neuromuscular disorders
• Neuroimmunology conditions
• Tic disorders and Tourette syndrome
• Traumatic brain and spinal cord injuries
• Vascular diseases of the brain and spinal cord

Providence Pediatric Neurology program offers evaluation and management of childhood neurological conditions, as below:

• Consultation, evaluation, and care management for a broad spectrum of pediatric neurological conditions
• Inpatient and outpatient EEG, and inpatient continuous video EEG monitoring to improve the diagnosis and management of seizure disorders
• Outpatient EMG testing when appropriate
• Coordination with Providence Pediatric Neuropsychologist
• MRI services coupled with specialized pediatric sedation
• Outpatient follow-up for children needing ongoing care
• Coordination with referring physicians and outpatient therapists
• Integrated behavioral health provider and social work support
• For families who it benefits, we can schedule back-to-back appointments with other pediatric specialties who are co-located
• Infusions and procedures with pediatric sedation

• New Patient Neurology Medical History form