Oregon law allows patients to decide whether they want their health information and biological samples to be available for anonymous and coded genetic research.
Providence Medical Group recently sent a mailing to patients to inform them of this law. We want to make sure that all Providence patients understand what the law means and how it applies to them. If you have additional questions that have not been answered by information you've received or information that is on this Web site, please feel free to call us at 503-574-9816.
Anonymous genetic research may use a patient’s health information or samples, such as blood or urine, but does not identify the patient as the source of them. Coded research is much like encrypted computer data. The patient’s identity is kept separate from his/her health information and samples, making it very difficult for someone to link them.
Genetic research can provide valuable information on how to improve health, such as ways to prevent or better treat heart disease, diabetes and cancer.
If you as a patient want to allow your health information and biological samples to be available for anonymous and coded genetic research, you don’t have to do anything. If you decide not to allow this, you must complete a Genetic Privacy Opt-Out form provided to you, and give or mail the form to your health care provider.
Genetic Privacy: Frequently Asked Questions
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